The NET Patient Foundation does undertake in house research focused on patient experience and unmet needs. We would be grateful if you could spare a few minutes to complete any surveys posted here, your experience is invaluable. We will keep you posted with results of surveys through our newsletters, website and social media channels.
Your NPF Experience
The NPF team would like to ask for your help to improve and maintain our services, by taking a couple of minutes to tell us about your NPF experience. We want to make sure our service(s) meets your expectations – all responses will be used in service review and improvement plans. All responses are anonymised.Click here to complete the survey.
Patient and Public Involvement in Research
Share your unique experiences of diagnosis, treatment and care.
Research on the effects of treatments has often overlooked the shared interests of patients, carers and clinicians. As a result, questions that they all consider important have not always been addressed. But this is changing. There is growing evidence that by involving people with lived experience of a particular condition the quality of research can be improved.
This means moving beyond thinking of patients as participants in a study, but as partners to help shape our work and the work of researchers by sharing their experiences of diagnosis, treatment and care.
Why is your involvement important?
People who each have a personal connection to neuroendocrine cancer, including patients, carers, and loved ones have a diverse range of views and experiences. Sharing these unique insights with researchers by getting involved in a variety of involvement opportunities helps ensure that only the highest quality research is being conducted.
How can I get involved?
If this is something you’d like to get involved in or if you have any questions, please email us.
Priorities in Research