UK data for incidents prevalence and survival of people with NETs is severely lacking in the UK, and so we set up a partnership with Public Health England and engaged with all the devolved nations to gather much needed information about diagnosis and outcomes for all NET patients. 2018 will produce a significant publication with our results.
We are currently undertaking a research road trip with our friends at AMEND. This project has a clear aim to identify outstanding research needs for the benefit of patients with NETs and neuroendocrine tumour syndromes, and to devise a research strategy for the same. Keep an eye on NET News section for updates.
You can get involved in our in-house research by taking part in our online surveys and sharing your vital and valuable experience.Click here to take part