How to join a clinical trial

If you are searching for trials, having information about your particular neuroendocrine cancer may help you to narrow down your search. Trials will always have a list of eligibility or inclusion/exclusion criteria. This is a list of characteristics that all patients must have to be accepted onto the study. Types of eligibility criteria can include: age, and current health status but may also specify disease specific criteria.

For example:

  • The type and primary site of neuroendocrine cancer 
  • If it is a functioning or a non-functioning neuroendocrine cancer
  • The grade of neuroendocrine tumour 
  • If the tumour is well differentiated or poorly differentiated

Further explanations of these terms can be found in the NET handbook, Section 2 https://www.netpatientfoundation.org/about-nets/what-are-nets/the-net-handbook/   

If you are unsure about your specific diagnosis speak to your care team,GP, or give us a call.

Some trials may look at one neuroendocrine subtype, whereas others may include a range of neuroendocrine types or other cancers.

Talk to your care team

If you find a trial you think you may eligible for you can discuss it with your clinical team.

A medical referral is the only way to join a trial. Your doctor can refer you to trials appropriate for you. They will also be able to contact the team running the trial and find out more information about it. Your doctor will be able to review the information about the trial with all of the things they know about you, your current health and previous treatments. Being under a specialist neuroendocrine team, or having access to that team ensures that  experts on your particular care and pathway are looking after you, but also they will be involved in specific neuroendocrine cancer research so will be able to answer questions you may have about clinical trials.