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There is no established treatment option for patients with a diagnosis of poorly differentiated (faster growing) neuroendocrine carcinoma (NEC) that started in the gastrointestinal tract, that has spread, and whose disease has not responded to treatment with a chemotherapy called a platinum, in addition to etoposide.
The goal of NET-02 will be to determine if one of the treatment options delays growth (progression) of the disease, more than the other.
This study will open in approximately 16 centres around the United Kingdom and will be co-ordinated through The Christie NHS Foundation Trust in Manchester, the University of Manchester and the Leeds Clinical Trials unit.Read more
Chief Investigator: Dr Mairéad McNamara
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Click on the link below for a database of privately and publicly funded clinical studies conducted in the UK and around the world. https://clinicaltrials.gov/
The only crowd-funded cancer drug trial in history
The team at Uppsala University have prepared the above video update on the AdVince phase 1 clinical trial for neuroendocrine tumour.
“A total of twelve patients will have to be treated at different dose levels. So far five patients have been treated and there are still seven patients to go, ” says Prof Magnus Essand.
“The first patient was treated in March 2016 so we hope that we can now finish the next seven in the next two years from now.
“Phase1 trial is about safety data primarily, that is the primary endpoint. But of course, we are also looking at efficacy if there are response.
“And we have seen responses already at the lower dosages we have seen occasions of tumour shrinkage in the liver that has been treated.
“So it is promising but before we say anything conclusive we need to finish the phase1 trial and we need to treat even more patients before we can make any firm conclusions. So it is very early days.”
A list of recent published trials with links to data.
Research publications from the NET Patient Foundation
In house research from the NET patient Foundation
NET Patient Foundation funded research publications
Pilot NET cancer research projects made possible through your support via the NET Patient Foundation grant.