Our vision is of a world in which people know how to recognise, diagnose, treat, care for, and ultimately, cure patients with Neuroendocrine Cancer.
There are many types of research project. You may be asked if you want to take part in research by your care team. This could involve having a blood or tissue sample taken for ‘biobanking’, so it can be studied further. A biobank is generally defined as a collection of human biological samples and associated information that is used for research purposes. Other studies are based on patient data and questionnaires and you may be asked if your data can be used or to complete surveys. Instead of finding out what someone else knows, researchers want to find new knowledge, something nobody knows yet. Researchers need to find data and evidence to back up their ideas.
One day, the knowledge that these researchers create may lead to people with neuroendocrine tumours leading longer, healthier lives. They may even find a cure.
However the process is long and slow. Research projects need funding, which is where your vital donations to our clinical fund go.
Here at the NET Patient Foundation our clinical fund provides:
• The provision of supportive care for those affected by NETs
• Research into patient focused issues related to patient experience and equality of care
• Vital clinical research in the UK with our partners at UKINETs.
We also support through grant applications:
• Nurse research, dietetic research and research looking into stratifying quality of life data collection.