NET Patient Foundation Patient Experience Survey
This survey aimed to gain valuable data on the diagnosis, treatment and car of, and information and support services for neuroendocrine cancer patients in order to improve the quality of health services for future patients.Click here to view
Where is Chapter 10?
In this report we make four recommendations for inclusion in the Cancer Task Force National Strategy to improve outcomes for rare and less common cancers, specially NETs.Click here to view
Widening the NET
This report is focused on improving outcomes for patients with NETs in Scotland it outlines ‘ambitions’ and ‘actions’ to ensure that progress continues to be made in Scottish NET care.Click here to view
NET Patient Foundation Research Abstracts
NPF and NCRAS Public Health England partnership project has been compiling statistics on the incidence, prevalence and survival of NET patients in England using English cancer registry data, with an aim to also access Scottish, Welsh and Northern Irish cancer registry data to also get UK wide statistics.
We carried out four pieces of research in 2017, abstracts for which can be found below:
- The Incidence and Prevalence of Neuroendocrine Tumours in England.
- The 1- year survival rates for Neuroendocrine tumour patients in England.
- Metachronus primary cancers in Neuroendocrine tumour patients.
- Neuroendocrine Tumour patients experiences of support in the community setting across the treatment trajectory.
NET Patient Foundation Audit of NHS Trusts in England
The audit carried out by researchers from Quality Health, on behalf of NPF, was to seek information about the delivery of Neuroendocrine Cancer services in Trusts across England.Click here to view