Publications

NET Patient Foundation Patient Experience Survey 

This survey aimed to gain valuable data on the diagnosis, treatment and car of, and information and support services for neuroendocrine cancer patients in order to improve the quality of health services for future patients. 

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Where is Chapter 10?

In this report we make four recommendations for inclusion in the Cancer Task Force National Strategy to improve outcomes for rare and less common cancers, specially NETs.

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Widening the NET 

This report is focused on improving outcomes for patients with NETs in Scotland it outlines ‘ambitions’ and ‘actions’ to ensure that progress continues to be made in Scottish NET care. 

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NET Patient Foundation Research Abstracts

NPF and NCRAS Public Health England partnership project has been compiling statistics on the incidence, prevalence and survival of NET patients in England using English cancer registry data, with an aim to also access Scottish, Welsh and Northern Irish cancer registry data to also get UK wide statistics. 

We carried out four pieces of research in 2017, abstracts for which can be found below: 

NET Patient Foundation Audit of NHS Trusts in England

The audit carried out by researchers from Quality Health, on behalf of NPF, was to seek information about the delivery of Neuroendocrine Cancer services in Trusts across England. 

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