Following updates from the NHS and UK Government – we have taken the decision to cancel ALL Natter meetings scheduled between now and 31st August 2020 – when we will review the situation. We realise how important these meetings are to those who attend – and want to ensure we can continue to provide ongoing community support. However, your health and well-being is our absolute priority.
We do have a platform to run ‘virtual’ Natter meetings that you can participate in from home – and we will, be in touch with all of our group facilitators to let them know how they can use this.
To all group facilitators/leads – please contact Nikie if you would like to continue your group ‘virtually’ over the next few months – we can support this.
To all Natter attendees – please contact either your group ‘lead’ or Nikie stating which group you normally attend, or would like to attend – and we will do our absolute best to ensure this vital community support is maintained during this difficult time.
Natter Support Groups are local community based meetings that offer an opportunity to meet others in your area, who are also affected by Neuroendocrine Cancer; patients, family, friends and supporters.
They are run by nurse specialists, fellow patients and/or local volunteers. Each group agrees its own format, in accordance with Neuroendocrine Cancer UK’s guidance, and are run as informally or formally as the group is comfortable with.
All groups offer refreshments and are free to attend – some meet monthly, others 6-8 weekly or quarterly, once/twice a year.
Those who attend the meetings tell us how important these groups are to them – how meeting others in a similar situation, with the same or similar diagnosis, symptoms, treatment plan or follow up, helps to reduce feelings of anxiety or isolation, improves understanding and creates new friendships and support.
I have been working, as a Clinical Nurse Specialist, with people diagnosed with malignant Neuroendocrine Tumours (Neuroendocrine Cancer) since 1999.
During that time, and since joining the Neuroendocrine Cancer UK (formerly NET Patient Foundation) in 2015, I have seen how this group of cancers impacts on all aspects of everyday life – from the shock of diagnosis to the uncertainty of the future, from managing symptoms to dealing with long term follow up – from feeling alone to becoming part of a community.
Many people have told me how isolating they feel their diagnosis is, how misunderstood it is by others. The Natter Groups provide a safe place to meet others – kindred spirits, who “get it” and who understand.
My ambition is to try to ensure that every patient, new or old, has that opportunity – knows that they have somewhere they can turn to for information, advice and support. Our joint hope and aim is to make sure that everyone here in the UK has access to support – by phone, on-line or face-to-face through our fabulous Natter Groups.
Patient Support Manager (RGN, PGDip)
Details of our groups, venues and contact details can be found here.
To find out more, please contact our NET Nurse Specialist Team:
Helpline: 0800 434 6476