From 2020 Neuroendocrine Cancer UK (formerly NET Patient Foundation) will plan and run one full day patient education event per year. The event is free to attend and is open to anyone affected by Neuroendocrine Cancer.
The event will provide interactive workshops, for specific Neuroendocrine Cancer (NC) type, where you will be provided relevant and up to date disease specific information, surrounded by those who have a similar NC type. There will also be sessions where the information will be more generalised. Topics covered in the general sessions may include: the psychological impact of NC, clinical trials and the global community. Q&A sessions will be run in the individual break out sessions for your specific NC type.
Our 1 day events will be run in collaboration with experts from the nursing, medical, psychology and dietetic community.
Alongside our one day event, we also support events in collaboration with local NET clinics who would like to run local education sessions where agendas and venues are sorted locally.
03/09/2019 – London – Research Event – Imperial College London – Completed
Peptide receptor radionuclide therapy; standards and novel approaches – Jamshed Bomanji
Personalised medicine – treatment of neuroendocrine tumours based on genetic information – Kate Lines
Small pancreatic neuroendocrine tumours – resection, ablation, or observation? – Ashley Clift
Development of liver surgery; from Prometheus to liver transplantation – Massimo Malago
Novel biomarkers for neuroendocrine tumours – Adam Frampton
Digital health; reality or fiction – Ashley Clift
11/10/2019 – London – Living With Event – NPF & Kings College Hospital – Completed
Agenda *Subject to change*:
Living with workshop
16/11/2019 – Leeds – St James’ Hospital – Completed
Neuroendocrine Tumours – an update
Gastrointestinal Symptoms and the link to Neuroendocrine Tumours
Imaging of Neuroendocrine Tumours
MDT Question & Answer Session
Living with a NET/NEN: The Role of Nutrition
28/02/2020 – Leicester – 9:30am – 4:00pm – Completed
Agenda *Subject to change*:
The Neuroendocrine Cancer UK Charity ( formerly NET Patient Foundation)
The HOPE course
Juggling your diet and your NET
The emotional impact of living with a NET
Local research in NETs
Current NET topics in Oncology
The importance of histology in managing NETS
PRRT and nuclear medicine scans
“Today my partner and I attended the patient education meeting at Prospero House which provided a generous amount of information relating to NETs.
As someone fairly newly diagnosed, I was impressed by the amount of technical information given, while extremely grateful that the top specialists were willing to come and explain so many issues involved in the treatment of NETs.”