Patient Education Events

From 2020 The NET Patient Foundation will plan and run one full day patient education event per year. The event is free to attend and is open to anyone affected by Neuroendocrine Cancer.

The event will provide interactive workshops, for specific NEN types, where you will be provided relevant and up to date disease specific information, surrounded by those who have a similar NEN type. There will also be sessions where the information will be more generalised. Topics covered in the general sessions may include: the psychological impact of NENs, clinical trials and the global community. Q&A sessions will be run in the individual break out sessions for your specific NEN type.

Our 1 day events will be run in collaboration with experts from the nursing, medical, psychology and dietetic community. 

Alongside our one day event, we also support events in collaboration with local NET clinics who would like to run local education sessions where agendas and venues are sorted locally. 


2019 Events

03/09/2019 – London – Research Event – Imperial College London – Completed 

Agenda:
Peptide receptor radionuclide therapy; standards and novel approaches – Jamshed Bomanji
Personalised medicine – treatment of neuroendocrine tumours based on genetic information – Kate Lines
Small pancreatic neuroendocrine tumours – resection, ablation, or observation? – Ashley Clift
Development of liver surgery; from Prometheus to liver transplantation – Massimo Malago
Novel biomarkers for neuroendocrine tumours – Adam Frampton
Digital health; reality or fiction – Ashley Clift 

Contact Leanne for a copy of the presentations

11/10/2019 – London – Living With Event – NPF & Kings College Hospital – Fully Booked

Agenda *Subject to change*:
MDT Q&A
Radiology talk
Living with workshop

Contact Leanne for further details, or to be added to the reserve list

16/11/2019 – Leeds – St James’ Hospital – **Yorkshire residents only**

Agenda *Subject to change*:
Overview of NETS – Symptoms, Diagnosis & Treatment
Nets and the GI System
NETS and the Diet
Q and A Panel
Mindfulness / Positive Mental Health

Register for the event

 

“Today my partner and I attended the patient education meeting at Prospero House which provided a generous amount of information relating to NETs. 

As someone fairly newly diagnosed, I was impressed by the amount of technical information given, while extremely grateful that the top specialists were willing to come and explain so many issues involved in the treatment of NETs.”