How We Can Support You

Due to the COVID-19 outbreak, our main office is closed and the team are working remotely. Our support services by phone and online remain open to you all.

A diagnosis of cancer is one of the greatest challenges anyone can face. Being diagnosed with a rare or uncommon cancer can have additional consequences, not least in terms of awareness, early diagnosis and access to expertise. Feelings of  isolation, fear, uncertainty and anxiety are not uncommon.

NCUK exists to address the unmet needs voiced by the Neuroendocrine Cancer community, to support patients and their loved ones with the physical and psychological burden of Neuroendocrine Cancers. We have a number of services to support you including:


Helpline

Our specialist nurse helpline, which is free and confidential – 0800 434 6476 . 

Email our nurses for help and information

Natter Groups

Following updates from the NHS and UK Government – we have taken the decision to cancel ALL Natter meetings scheduled between now and 31st August 2020 – when we will review the situation. We realise how important these meetings are to those who attend – and want to ensure we can continue to provide ongoing community support. However, your health and well-being is our absolute priority. 

We do have a platform to run ‘virtual’ Natter meetings that you can participate in from home – and we will, be in touch with all of our group facilitators to let them know how they can use this.

To all group facilitators/leads – please contact Nikie if you would like to continue your group ‘virtually’ over the next few months – we can support this.

To all Natter attendees – please contact either your group ‘lead’ or Nikie stating which group you normally attend, or would like to attend – and we will do our absolute best to ensure this vital community support is maintained during this difficult time.

Natter meetings are regionally based local support groups which offer the opportunity to speak to others who are affected by Neuroendocrine Cancer.

Find out more

Patient Education Events

From 2020 NCUK will plan and run one full day patient education per year. The event is free to attend and is open to anyone affected by Neuroendocrine Cancer.

Alongside our one day event, we also support events in collaboration with local NET clinics who would like to run local education sessions where agendas and venues are sorted locally.

Find out more

Information Guides and Videos

Our resources provide clear, accurate, reliable information about neuroendocrine cancer – all are developed in collaboration with, reviewed and endorsed by patient representatives and expert clinicians.

Find out more

Counselling Service

We know Neuroendocrine Cancer is more than just a physical diagnosis and can have emotional and social consequences. 

We are here to help. We offer a free telephone counselling service which is available to anyone affected by a Neuroendocrine Cancer; patients, family and friends. 

Find out more

Online Community

Join our UK Facebook community group – Neuroendocrine Cancer UK Support (formerly NET Natter UK Online) 
Join our supporters Facebook community group – Neuroendocrine Cancer UK – Family & Friends Support (formerly Next2NETs)
Join our international Facebook community group – Friends of Neuroendocrine Cancer UK (formerly Friends of the NPF) 

These closed groups provide a safe place for people affected by Neuroendocrine Cancer to talk to others in similar situations.

You can also find us on: Instagram & Twitter


Sharing Stories

Over 40,000 people are affected by Neuroendocrine Cancer (NETs) in the UK, with over 5,000 people newly diagnosed each year. That is more than 13 people a day. For many the first time they will have heard about Neuroendocrine Cancer will be the day they receive their diagnosis. The most powerful stories are those that are real.

We invite you to share your experiences here Get involved with our Faces of NETs Campaign

 

Natter Support Groups

Find out more

Attend a Patient Education Event

Find out more

Our Counselling Service

Find out more