Appendix net

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This topic contains 6 replies, has 3 voices, and was last updated by  hb 2 minutes ago.

Viewing 7 posts - 1 through 7 (of 7 total)
  • Author
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  • #55083

    hb
    Participant

    Newly diagnosed would love to chat to someone on same position ?

    #55085

    CD
    Participant

    Morning, I have recently been diagnosed with lung NET so it’s all a bit scary! There are a couple of FB sites that are really great support, you can probably link to them from the Home page. Or search on Facebook.NET Cancer blog. I joined a specific one for Lungs on Nikie recommendation . Have you looked at the downloadable PDF file from this site. It’s brilliant.
    Good luck with the research, I’m sure someone else will be along to help
    Chris

    #55086

    hb
    Participant

    The information available is all very limited and my doctor has explained due to lack of research there’s a lot of questions he can’t answer . Thank you for your reply . What stage are you at in the process ?

    #55088

    CD
    Participant

    Are you under the care of a NET specialist team as I think you will find a lot of information. Where do you live? You can always email the nurses at the netpatientfoundation are ask them to point you in the right direction.
    I have just started Chemotherapy and under the “care of” Royal Free Hospital but have not seen them yet.
    I would also suggest ronnyallen.com as a great resource on NETs
    Chris

    #55090

    Rollipo
    Participant

    Hi Hb, sorry to hear about your diagnosis and lack of answers. Back in April they found 2 net tumours within my appendix. Do you know the size of it and whether there has been any spread? I can only talk from my experience.

    • This reply was modified 6 days, 3 hours ago by  Rollipo.
    #55148

    hb
    Participant

    Thank you for responding . I had an appendicitis where the appendix was found to contain a malignant 2.5cm Tumor at grade 4. Octrocide scan and ct scan being done next week and then hemicolectomy. I’m just hoping scans don’t reveal any thing else .

    #55149

    hb
    Participant

    Iv not been referred to specialist but have lots of questions so am thinking about asking for referral for further information .

Viewing 7 posts - 1 through 7 (of 7 total)

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