2 May 2018 at 7:37 pm #57340
I visited my GP Practice this morning for my 4 weekly Sandostatin injection and was told that the surgery were no longer able to continue giving the injections. They have been told that the local acute trust will be taking responsibility for the injections using a 3rd party company, patients will be given the options to do the injections themselves or train a family member or they will arrange for a nurse to visit your home.
I have received no communication or calls from anyone informing me of these changes, however, I have seen emails from NEW Devon CCG indicating that this change is being implemented across the whole of Devon, not sure about Torbay CCG.
I have raised serious concerns with the CCG and I have also contacted the Peninsular Cancer Alliance to voice the effect of these changes on patients and carers.
Has anyone else come across this change within Devon or further afield please let me know?
Net Fossil2 May 2018 at 11:49 pm #57344
I think you have said on other posts that you do not do Facebook – however – it might be worth your while looking at the information put out by Ronny Allan. He posted a few weeks ago that he has a nurse come to his house to administer the treatment. It is the same nurse and goes smoothly.
Catherine3 May 2018 at 12:16 am #57345
Hello Roy, good to hear from you again, but sadly, this website forum is to be closed on Friday, not good for those of us that do not ‘do’ or like facebook.
Although I don’t live in Devon, a few members have had changes regarding their injection. Some have found that their GPs will not do this injection anymore. I have mine delivered, through the Christie, a week before I take it to my GP for the nurse to do, so, I am hoping that things will stay as they are. But, I think I would be more than happy for a specialist nurse to come to my home to do the injection, it would make things much easier. Are you saying that you now need your injection, and nothing has been set up? if that is the case, then I would say you must get in touch with the hospital that is treating you. Hope you get this sorted Roy, gosh, you have been on this forum for many, many years, it will be a sad day on Friday, I will miss so many of my dear friends I have made over the five years I have been a member, Carole.3 May 2018 at 7:49 am #57346
Good morning again Roy, could I ask, how many years you have been having the Sandostatin injection? Carole.3 May 2018 at 11:33 am #57349
I started the daily injections in 1993 and moved to monthly injections in 1999, by my calculations I have had about 300 monthly injections.
Catherine: I was aware that some people were having their injections at home, but to be told that the surgery can’t do them anymore, I left my surgery with no details of whom or where my next injection is coming from, this situation for some patient would cause major distress.
What complicates the situation even further that is Derriford Hospital my local trust in Plymouth does not look after me, so I am still awaiting feedback from the CCG on what is happening.
Net Fossil3 May 2018 at 3:52 pm #57350
Yes this seems to be the way things are going but it should all be set up via the hospital as far as I am aware. Dave’s Sandostatin is delivered a week before it’s due but as you may have read in the past, I administer it for Dave.
As you’ve already contacted the relevant office, I would wait a couple of weeks then contact them again. You should receive a phone call from the company that supplies the injection and also a phone call from a nurse that will be attending. In our case, when we had a nurse at the end of last year because I had surgery on my arm, she phoned around 2 weeks beforehand to arrange the date. I hope it all gets sorted out but it is stress that no-one needs and is entirely wrong for GPs to be able to opt out of their duties.
Thinking of you.
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