A diagnosis of cancer is one of the greatest challenges anyone can face. Being diagnosed with a rare or uncommon cancer can have additional consequences, not least in terms of awareness, early diagnosis and access to expertise. Feelings of isolation, fear, uncertainty and anxiety are not uncommon.
Neuroendocrine Cancer UK (formerly NET Patient Foundation) exists to address the unmet needs voiced by the neuroendocrine cancer community, to support patients and their loved ones with the physical and psychological burden of Neuroendocrine cancers.Click here to read our charity leaflet
I am Catherine Bouvier, CEO of the Neuroendocrine Cancer UK. I co-founded the NPF along side our current chair Peter Gwilliam and 2 NET patients, Andy Geach and Kathy Kalamis in 2006. I started working full time in the organisation in 2007.
My role is to remain the driving force behind an organisation that I truly believe in, and ensure that all staff, collaborators, and contractors focus on the purpose of the NPF as part of everything they do.
Previously a Neuroendocrine Tumour Nurse Specialist, I was based at the Royal Free Hospital in London for 7 years and was responsible for the support, education and coordination of the management of day to day patient care. My educational role also expanded to other health care professionals both locally, nationally and internationally. I have worked on the production of various patient and medical educational tools and have coordinated a number of research studies for patients with Neuroendocrine Tumours. I set up a frontline nursing service holding regular screening, follow-up and emergency clinics. I am a member of UKINETS and other specialist neuroendocrine groups.
Specialist Nurse – Patient Support, Information & Education
Nikie joined NCUK in November 2015. Nikie is responsible for supporting Neuroendocrine Cancer patients and their families throughout the U.K., whether face to face, through NET Natter groups, online or our advice line.
Education and information is an essential part of providing this support : from patient resources to education events to providing healthcare professionals with information, support and advice.
Prior to joining the NCUK, Nikie worked as the Lead Nurse Specialist for NET at Kings Healthcare Partners ENETs Centre of Excellence. She has been a NET nurse specialist for more than 20years, with a background in HPB (Liver, pancreas, bile duct and small bowel disease including cancer) and education.
You will be able to contact Nikie via our helpline 0800 434 6476 or by email Nikie
Leanne joined the team in January 2016 and is responsible for supporting the CEO and the general running of the office. Leanne organises all of our patient education events including the NET Retreat. Leanne also is here to support all of our fundraisers with their events, challenges and anything else they are up to. She loves hearing about all the incredible things our supporters do to raise awareness and funds for NCUK. Get in touch with her and let her know what you’re doing and she’ll help you along the way.
Leanne has previously worked within the educational charity sector, where she has been responsible for organising professional events.
Marketing & Communications Officer
Clare joined the team in November 2019 and is responsible for all of the marketing and communications here at the NCUK, including our social media and awareness raising campaigns.
Prior to joining NCUK, Clare worked as a PR Executive within the educational charity sector.
Famida joined the team in November 2019 and is responsible for providing administration support to our Operations Manager, Leanne. Famida is responsible for distributing all of the shop orders, fundraiser merchandise and all of the patient information to both patients and hospitals.
Famida has previously worked in administration roles.
Philippa will be supporting our nurse service and will provide a call back service, with dedicated time slots, a few evenings a month.
Our thanks to Peter Gwilliam, Liddy Oldroyd, Andy Geach and Cathy Kalamis for all of their inspiration and hard work in helping to set up the Neuroendocrine Cancer UK.
- Peter Gwilliam (Chairman)
- David Jones
- Ros Littlejohn
- Marion Phillips
- Dr Rajaventhan Srirajaskanthan
- Irene Wotherspoon
The NPF was co-founded by patients for patients, and we are delighted to welcome into the team our NCUK Ambassadors. They will work with us on a variety of projects maintaining the patient centric ethos that underpins everything we do.
Click name for video introduction.
Prof. Martyn Caplin
Dr Martyn Caplin is a consultant in gastroenterology and hepatobiliary medicine at the Royal Free Hospital in London. In addition to his general practice in gastroenterology he is lead physician for the Neuroendocrine Tumour Unit at the Royal Free, leading a multidisciplinary clinical team as well as heading a research programme in neuroendocrine tumours. His research interests include gastrointestinal peptides, new targets for neuroendocrine tumour therapy, assessing the efficacy of targeted isotope therapy for neuroendocrine tumours and other interventional protocols.
It is a great pleasure and honor to continue being a patron of Neuroendocrine Cancer UK. I recall when we first set up ‘Living with Carcinoid’ in 2000 at the Royal Free Hospital and the team have done an amazing job in developing and establishing Neuroendocrine Cancer UK as not only the premier UK NET support group but also an internationally respected and high profile group.
Neuroendocrine Cancer UK is not just about support and information which is so important especially for rare cancers but also ‘patient empowerment’ so that Neuroendocrine Cancer patients can have what is rightfully due to them. Thus the importance of Neuroendocrine Cancer UK in campaigning for PRRT, liaising with NICE etc and being a political voice to raise the profile of Neuroendocrine Cancer and pressure the NHS for appropriate recognition for Neuroendocrine Cancer patients.
Neuroendocrine Cancer UK does fantastic work in collaborating with Neuroendocrine Cancer specialists and UKI NETs as well as having a strong voice in Europe within ENETS and European Reference Network for Rare Cancers. Another true success has been the research programme and funding inspired by Neuroendocrine Cancer UK and the research grants it has developed.
I hope to continue to promote and help Neuroendocrine Cancer UK both nationally and internationally so that the voice of the Neuroendocrine Cancer UK patients is heard loudly and clearly.
Professor Martyn Caplin
Royal Free Hospital
Sir Peter Stothard
Sir Peter Stothard is Editor of the Times Literary Supplement and was Editor of The Times from 1992 to 2002. His book On the Spartacus Roaddeals, in part, with some of the symptoms associated with a neuroendocrine tumour of the pancreas for which he was successfully treated in 2000. ‘I am happy to support Neuroendocrine Cancer UK and its campaign for increased awareness and earlier diagnosis of this slothful but determined killer’.