Patient Stories

The most powerful stories are those that are real – we invite you to share your experiences here.

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3 November 2017

Christine’s NET story

My journey with Neuroendocrine Cancer started 20 years ago. I wasn’t aware at the very beginning that it was a […]

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3 November 2017

Richard’s NET journey

From the outset, my treatment plan has been clearly laid out and what I have been told was going to […]

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3 November 2017

Sharon’s NET story

My NET story Have you ever had certain symptoms and “self diagnosed” yourself? I have and it nearly killed me! […]

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3 November 2017

Lyn’s poem about being a NET patient

What does it mean to you? What does it mean to you…  … the Nurse Practitioner who shrugged her shoulders […]

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11 April 2016

Linda blogs about MIBG treatment

“I am having my fourth lot of MIBG treatment, starting on Thursday 7 April at The Beatson in Glasgow under […]

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29 March 2016

Patient testimonial – PRRT

“My story started approximately ten years ago, whereby I was diagnosed with a Neuroendocrine Tumour to the pancreas. I was […]

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19 January 2016

Mark Zwanziger – I'm running the London Marathon thanks to PRRT

My story is very similar to many patients with Neuroendocrine cancer (NET cancer).  It started with being ill with “carcinoid syndrome” […]

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30 November 2015

NETs in the news – Southend Primark manager Kim tells her story

Mum of two, Kim Skinner, bravely shares her story here in the Southend Echo.  

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27 October 2015

Mark & Lou’s story – riding our NET rollercoaster

I started to write this as a diary of three summer 2015 triathlons undertaken to raise money for the NET […]

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20 April 2015

BBC's Nick Robinson returns to work after NET op

There is a great article in today’s Telegraph by NET survivor Dominic Nutt about the political editor’s operation to remove […]

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8 April 2015

"My baby saved my life" – Julie's story

             

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27 October 2014

Vicky's story

On the 3rd August I had an emergency appendectomy. I have had several surgeries and get very anxious about having […]

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