Patient Stories

The most powerful stories are those that are real – we invite you to share your experiences here.

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27 March 2019

Jamie’s Neuroendocrine Cancer Story

On the 3rd August 2016 my life changed forever. For some reason it felt as though I couldn’t digest my […]

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15 March 2019

Surprised by Beauty, Tom’s NET Story

On January 2, 2015, I had a life-changing experience: I almost died. I was suddenly hospitalized with internal bleeding caused […]

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28 September 2018

Mike’s Neuroendocrine Cancer Story

I still feel hesitant in drawing attention to myself and the fact that I have NET cancer. However awareness is […]

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3 November 2017

Christine’s NET story

My journey with Neuroendocrine Cancer started 20 years ago. I wasn’t aware at the very beginning that it was a […]

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3 November 2017

Richard’s NET journey

From the outset, my treatment plan has been clearly laid out and what I have been told was going to […]

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3 November 2017

Sharon’s NET story

My NET story Have you ever had certain symptoms and “self diagnosed” yourself? I have and it nearly killed me! […]

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3 November 2017

Lyn’s poem about being a NET patient

What does it mean to you? What does it mean to you…  … the Nurse Practitioner who shrugged her shoulders […]

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29 March 2016

Patient testimonial – PRRT

“My story started approximately ten years ago, whereby I was diagnosed with a Neuroendocrine Tumour to the pancreas. I was […]

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20 April 2015

BBC's Nick Robinson returns to work after NET op

There is a great article in today’s Telegraph by NET survivor Dominic Nutt about the political editor’s operation to remove […]

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28 July 2014

Roy and Ian's video stories

To hear about the experiences of two NET patients, please have a look at this video…

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28 July 2014

Faces of NET

Read about some of the many different experiences of people affected by NET cancer in this booklet produced by the […]

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5 November 2013

Catherine's story

I am contacting you as encouraged by a school friend who is also my age now like me and is […]

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