Patient Stories

The most powerful stories are those that are real – we invite you to share your experiences here.

Send your story

27 March 2019

Jamie’s Neuroendocrine Cancer Story

On the 3rd August 2016 my life changed forever. For some reason it felt as though I couldn’t digest my […]

Read More about Jamie’s Neuroendocrine Cancer Story

15 March 2019

Surprised by Beauty, Tom’s NET Story

On January 2, 2015, I had a life-changing experience: I almost died. I was suddenly hospitalized with internal bleeding caused […]

Read More about Surprised by Beauty, Tom’s NET Story

28 September 2018

Mike’s Neuroendocrine Cancer Story

I still feel hesitant in drawing attention to myself and the fact that I have NET cancer. However awareness is […]

Read More about Mike’s Neuroendocrine Cancer Story

3 November 2017

Christine’s NET story

My journey with Neuroendocrine Cancer started 20 years ago. I wasn’t aware at the very beginning that it was a […]

Read More about Christine’s NET story

3 November 2017

Richard’s NET journey

From the outset, my treatment plan has been clearly laid out and what I have been told was going to […]

Read More about Richard’s NET journey

3 November 2017

Sharon’s NET story

My NET story Have you ever had certain symptoms and “self diagnosed” yourself? I have and it nearly killed me! […]

Read More about Sharon’s NET story

3 November 2017

Lyn’s poem about being a NET patient

What does it mean to you? What does it mean to you…  … the Nurse Practitioner who shrugged her shoulders […]

Read More about Lyn’s poem about being a NET patient