NET News

If you have any news you’d like to share with us – whether it’s about a fundraiser you’re organising or NETs in the news, please let us know.

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8 November 2018

Add a Frame to your Facebook Profile Picture for NET Cancer Day

Help us to raise awareness this NET Cancer Day by applying our NET Cancer Day frame to your profile picture. […]

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8 November 2018

UK NET CANCER DAY 2018

Help raise awareness of NETs this NET Cancer Day Saturday 10th November is NET Cancer Day, a day dedicated to raising awareness of […]

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2 November 2018

Moving scenes as Town Hall passes motion to tackle rare cancers

Hackney Council has unanimously resolved to work with local GPs and the NHS Trust to do more to tackle neuroendocrine […]

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1 November 2018

Hackney Council’s unanimous support for rare and uncommon cancers

NET Patient Foundation’s key purpose is to support and inform patients and families from diagnosis, enabling access to the best […]

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31 October 2018

Neuroendocrinologists of the Future

This NET Cancer Day we have launched our Neuroendocrinologists of the Future campaign and will be raising awareness of NETs […]

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25 October 2018

Medical Innovation and the Battle Against Cancer

NET Patient Foundation attended the 13th Annual Lecture organised by the Medicines and Healthcare products Regulatory Agency.   This was […]

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24 October 2018

Rare cancers: the landscape is changing

“Fourteen years ago, when I was first thrust as a new patient advocate into the world of rare cancers – […]

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24 October 2018

Cancer 52: Getting a better deal for people with rare and less common cancers: the next ten years.

Cancer 52 recently published their new briefing document ‘Getting a better deal for people with rare and less common cancers: the next […]

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2 October 2018

In Memory of Katharina Mellar

It is with a heavy heart that we have to announce that Katharina Mellar, the long-standing and tireless chairwoman of […]

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29 August 2018

Final Appraisal Document for Lutetium (177lu) oxodotreotide

Following on from the news that Lutetium (177lu) oxodotreotide was recommended, today we can share with you the Final Appraisal […]

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28 August 2018

NET-02 Trial – First of its kind

NET-02:  A multi-centre, randomised, parallel group, open-label, phase II, single-stage selection trial of liposomal irinotecan (nal-IRI) and 5-fluorouraciL (5-FU)/folinic acid […]

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17 August 2018

Aretha Franklin sadly dies of Pancreatic Neuroendocrine Cancer

We are very saddened to hear of the death of Aretha Franklin and our condolences go out to her family, […]

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