NET News

If you have any news you’d like to share with us – whether it’s about a fundraiser you’re organising or NETs in the news, please let us know.

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6 March 2019

The Patient Self-Referral Questionnaire

  Failing to enrol patients into clinical trials can dramatically delay the development of new treatments. Currently 80% of all […]

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6 March 2019

Research priorities in NETs

The NET Patient Foundation and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are developing a joint research strategy to ensure […]

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5 March 2019

NPF February Roundup

Read our monthly roundup.  February 2019.  

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28 February 2019

Living With an Uncommon Cancer Live Facebook Q&A

In the UK almost half of those diagnosed with cancer will be told they have a rare or uncommon type […]

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22 February 2019

NET/NEC Nurse Competency Framework Initiative

Delivery of high-quality care that produces better outcomes for patients needs a high-quality workforce: skilled and competent practitioners who are […]

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13 February 2019

National Cancer Research Institute’s work on Living With and Beyond Cancer

By 2030 four million people in the UK will be living with the long-term consequences of cancer, but currently there […]

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13 February 2019

A new route for NET Ambassadorship recently launched

“A fabulous account of Mark’s venture into the new patient involvement panel for NICE. Really worth a read and I […]

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12 February 2019

NET Patient Foundation Attends EURACAN Meeting

European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that […]

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4 February 2019

NET Patient Foundation launches new campaign Faces of NETs

This World Cancer Day we’re asking you to make your voice count for the Neuroendocrine Cancer community by joining our […]

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31 January 2019

NET Patient Foundation NET News Magazine

We’re delighted to share with you our first edition of NET News Magazine. As you read through this magazine, you […]

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28 January 2019

NPF holds a NET Patient Education Meeting in Manchester

NET Patient Foundation in association with The Christie Hospital’s NET team held a dedicated NET Patient Education Meeting on Friday […]

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28 January 2019

NPF and AMEND Visit ACC Research Team at Birmingham University

On Friday 18th January, NPF’s Chief Executive, Catherine Bouvier, and AMEND’S CEO, Jo Grey, met the ACC Research Team led […]

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