NET News

If you have any news you’d like to share with us – whether it’s about a fundraiser you’re organising or NETs in the news, please let us know.

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24 May 2019

Sunflower Lanyard Scheme for Hidden Disabilities

London North Eastern Railway (LNER) has become the latest in a series of transport providers to introduce sunflower lanyards for […]

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24 May 2019

Cheshire Pressed Launch Charity T-shirt for NET Patient Foundation

A very special thank you to Helen and Cheshire Pressed for their amazing support in fundraising for NET Patient Foundation […]

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20 May 2019

12th ENETs recognised Centre of Excellence in the UK

We are delighted to receive the news that we now have a 12th ENETs recognised Centre of Excellence in the […]

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20 May 2019

NET Patient Foundation’s Lung Neuroendocrine Cancer Project

On the 9th May the NET Patient Foundation Lung Neuroendocrine Cancer Project kicked off with the first meeting with our […]

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20 May 2019

Blood mRNA Measurement (NETest) for Neuroendocrine Tumor Diagnosis of Image-Negative Liver Metastatic Disease

The Endocrine Society has accepted the NETest as a biomarker for microscopic liver disease (minimal residual disease) in neuroendocrine tumors […]

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8 May 2019

Personal Independence Payment (PIP) Appeal

NET Patient Foundation has 5 key pillars of activity focused on improving the lives of those affected by Neuroendocrine Cancer […]

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1 May 2019

NPF April 2019 Roundup

Each month we provide a roundup of announcements, news and updates.  

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30 April 2019

The Index of Cancer Preparedness (ICP)

The Index of Cancer Preparedness (ICP) looks at a wider range of elements that are relevant to cancer control. It […]

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29 April 2019

Women’s and Men’s Health – Live Facebook Q&A

Women are more likely to be diagnosed with depression than men, but men have a higher suicide rate. In 2017, […]

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9 April 2019

Important CREON® Update

Mylan, the marketing authorisation holder for Creon, has decided to discontinue the manufacture and distribution of Creon 40K from June […]

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4 April 2019

NETest

Trying to find optimal investigations to get the most relevant information about what is happening to your tumour(s) is really […]

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4 April 2019

Rare Barometer Voices Survey

New Rare Barometer Voices survey on availability and experiences of rare disease treatments is now live and available in 23 […]

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