NET News

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23 July 2019

Cancer52/PHE Event: Development in Data for Rare and Less Common Cancers

On the 22nd May, Cancer52 and PHE/NCRAS held an event focussed on the Developments in Data for Rare and Less […]

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23 July 2019

How to survive the fake news about cancer

For Eileen O’Sullivan, being diagnosed with breast cancer in 2013 was the catalyst for a deluge of distinctly unscientific and […]

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23 July 2019

How a rare disease diagnosis can lead to mental health problems

With more than four in ten rare disease patients affected by depression, and significantly higher rates of illnesses like anxiety, […]

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27 June 2019

NET Patient Foundation Attends The INCA Global NET Patient Summit

This years summit was a collaboration of 26 member organisations from 22 countries, with a single goal to work on […]

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27 June 2019

NET Patient Foundation Attends The British Society of Gastroenterology Annual Conference

“You go through the stages… denial, anger, through to grief for the life that will never be the same once […]

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17 June 2019

NET Patient Foundation Attends ACRONET 2019

With over 200 delegates, from across the UK and Ireland, ACRONET 2019, held 6-7 June, was a busy and interesting […]

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14 June 2019

Review of Treatment Options of Psychiatric Symptoms in a Case of a Functional Neuroendocrine Tumor

Treatment of psychiatric symptoms in syndromic Neuroendocrine Tumour patients has been found to be challenging. The article below suggests that […]

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14 June 2019

Economics of Gastroenteropancreatic Neuroendocrine Tumors: A Systematic Review

Cost-effectiveness and budget impact considerations are inherent  in the  the decision-making process for treatment reimbursement. A systematic review of the […]

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31 May 2019

Neuroendocrine Cancer Patient Specialist Centre Survey Involvement: Shaping Care for the Future 

**PATIENTS LIVING IN / OR RECEIVING TREATMENT IN THE UK ONLY PLEASE** The NET Patient Foundation is working with Quality Health and […]

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31 May 2019

Birmingham Patient Education Event

NET Patient Foundation was delighted to be invited to have a presence and talk at the recent Birmingham Centre of […]

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31 May 2019

NPF attends European Endocrinology Conference (ECE) 2019

With over 3,700 delegates, from more than 90 countries, ECE 2019, held 18-21 May, was a busy and interesting conference. […]

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29 May 2019

NET Patient Foundation announces collaboration with Maggie’s Centres

We are delighted to announce our collaboration with Maggie’s Centres.  This collaborative partnership will enable us to further develop our […]

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