NET News

If you have any news you’d like to share with us – whether it’s about a fundraiser you’re organising or NETs in the news, please let us know.

Email us

25 March 2019

NET Patient Foundation attends British Psychosocial Oncology Society Conference

Who we are, how we see ourselves – how we feel and think about our selves, our relationships, our community, […]

Read More about NET Patient Foundation attends British Psychosocial Oncology Society Conference

22 March 2019

NET Patient Foundation Attends ‘Theranostics Is Here and Now’ Meeting

On the 20th March 2019 the NET Patient Foundation attended the ‘Theranostics is here and now’ meeting, arranged by the […]

Read More about NET Patient Foundation Attends ‘Theranostics Is Here and Now’ Meeting

14 March 2019

NET Patient Foundation attends ENETs 16th Annual Conference

Catherine Bouvier, NPF’s Chief Executive, attended the European Neuroendocrine Tumor Society 16th Annual Conference which was held in Barcelona on […]

Read More about NET Patient Foundation attends ENETs 16th Annual Conference

6 March 2019

The Patient Self-Referral Questionnaire

  Failing to enrol patients into clinical trials can dramatically delay the development of new treatments. Currently 80% of all […]

Read More about The Patient Self-Referral Questionnaire

6 March 2019

Research priorities in NETs

The NET Patient Foundation and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are developing a joint research strategy to ensure […]

Read More about Research priorities in NETs

5 March 2019

NPF February Roundup

Read our monthly roundup.  February 2019.  

Read More about NPF February Roundup

28 February 2019

Living With an Uncommon Cancer Live Facebook Q&A

In the UK almost half of those diagnosed with cancer will be told they have a rare or uncommon type […]

Read More about Living With an Uncommon Cancer Live Facebook Q&A

22 February 2019

NET/NEC Nurse Competency Framework Initiative

Delivery of high-quality care that produces better outcomes for patients needs a high-quality workforce: skilled and competent practitioners who are […]

Read More about NET/NEC Nurse Competency Framework Initiative

13 February 2019

National Cancer Research Institute’s work on Living With and Beyond Cancer

By 2030 four million people in the UK will be living with the long-term consequences of cancer, but currently there […]

Read More about National Cancer Research Institute’s work on Living With and Beyond Cancer

13 February 2019

A new route for NET Ambassadorship recently launched

“A fabulous account of Mark’s venture into the new patient involvement panel for NICE. Really worth a read and I […]

Read More about A new route for NET Ambassadorship recently launched

12 February 2019

NET Patient Foundation Attends EURACAN Meeting

European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that […]

Read More about NET Patient Foundation Attends EURACAN Meeting

4 February 2019

NET Patient Foundation launches new campaign Faces of NETs

This World Cancer Day we’re asking you to make your voice count for the Neuroendocrine Cancer community by joining our […]

Read More about NET Patient Foundation launches new campaign Faces of NETs