If you have any news you’d like to share with us – whether it’s about a fundraiser you’re organising or NETs in the news, please let us know.
9 April 2019
Mylan, the marketing authorisation holder for Creon, has decided to discontinue the manufacture and distribution of Creon 40K from June […]
4 April 2019
Trying to find optimal investigations to get the most relevant information about what is happening to your tumour(s) is really […]
4 April 2019
New Rare Barometer Voices survey on availability and experiences of rare disease treatments is now live and available in 23 […]
2 April 2019
(Previously titled Neuroendocrine Tumours – Diet & surgery to the Digestive System). This guide has been developed to ensure NET patients […]
2 April 2019
Each month we provide a roundup of announcements, news and updates.
29 March 2019
In October, Hackney Council unanimously passed a motion on rare and uncommon cancer. On the 28th March, City and Hackney […]
Read More about NET Patient Foundation attends Hackney GP Seminar on Rare and Uncommon Cancers
25 March 2019
Who we are, how we see ourselves – how we feel and think about our selves, our relationships, our community, […]
Read More about NET Patient Foundation attends British Psychosocial Oncology Society Conference
22 March 2019
On the 20th March 2019 the NET Patient Foundation attended the ‘Theranostics is here and now’ meeting, arranged by the […]
Read More about NET Patient Foundation Attends ‘Theranostics Is Here and Now’ Meeting
14 March 2019
Catherine Bouvier, NPF’s Chief Executive, attended the European Neuroendocrine Tumor Society 16th Annual Conference which was held in Barcelona on […]
Read More about NET Patient Foundation attends ENETs 16th Annual Conference
6 March 2019
Failing to enrol patients into clinical trials can dramatically delay the development of new treatments. Currently 80% of all […]
6 March 2019
The NET Patient Foundation and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are developing a joint research strategy to ensure […]
