NET News

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9 April 2019

Important CREON® Update

Mylan, the marketing authorisation holder for Creon, has decided to discontinue the manufacture and distribution of Creon 40K from June […]

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4 April 2019

NETest

Trying to find optimal investigations to get the most relevant information about what is happening to your tumour(s) is really […]

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4 April 2019

Rare Barometer Voices Survey

New Rare Barometer Voices survey on availability and experiences of rare disease treatments is now live and available in 23 […]

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2 April 2019

Gut Surgery – How Diet can Help V2

(Previously titled Neuroendocrine Tumours – Diet & surgery to the Digestive System). This guide has been developed to ensure NET patients […]

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2 April 2019

NPF March 2019 Roundup

Each month we provide a roundup of announcements, news and updates.  

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29 March 2019

NET Patient Foundation attends Hackney GP Seminar on Rare and Uncommon Cancers

In October, Hackney Council unanimously passed a motion on rare and uncommon cancer. On the 28th March, City and Hackney […]

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25 March 2019

NET Patient Foundation attends British Psychosocial Oncology Society Conference

Who we are, how we see ourselves – how we feel and think about our selves, our relationships, our community, […]

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22 March 2019

NET Patient Foundation Attends ‘Theranostics Is Here and Now’ Meeting

On the 20th March 2019 the NET Patient Foundation attended the ‘Theranostics is here and now’ meeting, arranged by the […]

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14 March 2019

NET Patient Foundation attends ENETs 16th Annual Conference

Catherine Bouvier, NPF’s Chief Executive, attended the European Neuroendocrine Tumor Society 16th Annual Conference which was held in Barcelona on […]

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6 March 2019

The Patient Self-Referral Questionnaire

  Failing to enrol patients into clinical trials can dramatically delay the development of new treatments. Currently 80% of all […]

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6 March 2019

Research priorities in NETs

The NET Patient Foundation and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are developing a joint research strategy to ensure […]

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5 March 2019

NPF February Roundup

Read our monthly roundup.  February 2019.  

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