NET News

If you have any news you’d like to share with us – whether it’s about a fundraiser you’re organising or NETs in the news, please let us know.

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18 September 2017

Revolutionary Immunotherapy: CAR T-Cell Therapy

Click here for more information and updates  – CAR T- Cell Immunotherapy

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14 September 2017

Joint Action on rare Cancers – NETs included!

Click here to read all about it – Jarc brochure_Final

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14 September 2017

NPF Attends ESMO 2017

  Click here for more information – ESMO 2017 1

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23 August 2017

Please click below for the full round-up of August’s wonderful fundraising activities. Thank you all so much. Summer Fundraising Roundup AUGUST […]

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23 August 2017

The Latest Cancer Patient Experience Survey

Please click the below link for the latest Cancer Patient Experience Survey completed by the NHS. CPES 2016 national report

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18 August 2017

Negative NICE draft guidance for Lutathera (Lutetium)

We are fighting this along with NET teams across England…not a final decision so still hope! You can have your say […]

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18 August 2017

Check out our NET TV!

Various videos to support the understanding of NETs – take a look! https://vimeopro.com/netpatientfoundation/patient-education

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18 August 2017

Immunotherapy – Hype or Hope?

This arrived in my inbox recently…an interesting read goo.gl/f9Xk8H

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18 August 2017

The Invisible NET Population

A great post by the blogger Ronny Allan Click here to read the whole post: https://ronnyallan.com/2017/08/14/the-invisible-neuroendocrine-tumor-patient-population/

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18 August 2017

Number of cancer pts waiting longer for treatment has increased…

The HuffPost UK reports on analysis from the Labour party that reveals the number of cancer patients waiting for treatment […]

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18 August 2017

2016 Cancer Patient Experience Survey Results

Please click here for the latest Cancer Patient Experience Survey CPES 2016 national report

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18 August 2017

NPF in the Oxford Mail!

The amazing NET Natter group in Oxford recently did an amazing walk across the Ridgeway in Oxford to raise funds for […]

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