NET News

If you have any news you’d like to share with us – whether it’s about a fundraiser you’re organising or NETs in the news, please let us know.

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22 March 2018

The 2017 State of Cancer Report: The Impact of Digital Information and Patient Support Networks

“A new Healthline survey of 1,500 cancer patients, survivors, and caregivers found that 89 percent of people diagnosed with cancer […]

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22 March 2018

Research into potential side effects of somatostatin analogues

Thank you to all those who participated in NET Patient Foundation’s research into the potential side effects of somatostatin analogues that […]

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21 March 2018

NPF Patient Representative Attends ENETs

I attended the European Neuroendocrine Tumour Society -ENETS –  Conference last week as a patient representative and  hope it may […]

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12 March 2018

Neuroendocrine Tumour Research Foundation awards six new research grants

NETRF awarded six new research grants totaling $1.85 million to leading academic institutions around the world. The goal of the […]

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15 December 2017

NET Patient Foundation Research 2017

NPF and NCRAS Public Health England partnership project has been compiling statistics on the incidence, prevalence and survival of NET patients in […]

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1 December 2017

Avelumab becomes the first treatment for rare skin cancer metastatic Merkel Cell Carcinoma

BAVENCIO® (avelumab) becomes the first treatment for rare skin cancer metastatic Merkel Cell Carcinoma (mMCC) to be licensed for use […]

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10 November 2017

Sally’s NET story

As I trudged numbly from one unprofitable doctor’s appointment to another throughout 2007/8 I didn’t know that not  pinning down […]

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10 November 2017

Rachael’s NET story

Here is my #NetCancer story so far…. On 29 February 2016 I was told that one thing that no one […]

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10 November 2017

INCA: Unmet needs in global NETs patient community

The International Neuroendocrine Cancer Alliance (INCA) is a global alliance made up of 20 patient advocacy and research groups in […]

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9 November 2017

NET Cancer Day 2017 – Widening the NET

Today, the NET Patient Foundation publishes a new report focused on improving outcomes for patients with NETs in Scotland. This […]

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7 November 2017

Ann Edgar Charitable Trust Newsletter

For the all the news from our friends in Scotland please click here:  http://mailchi.mp/627f89f0eca7/october-newsletter

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26 October 2017

Read the latest UKINETS newsletter

UKINETs are the medical society working hard to improve services and clinical benefits for all patients. We work very closely […]

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