On the 9th May the NET Patient Foundation Lung Neuroendocrine Cancer Project kicked off with the first meeting with our patient and supporter advisory group.
We worked through the plans to provide adequate, relevant and up to date information for those newly diagnosed and living with a Lung Neuroendocrine Cancer.
A huge thank you to our board for their input, ideas, experience and expertise. Also a big thank you to those who completed the survey, as this provided vital information and details of the concerns that are felt in the community. It also the highlighted the obvious need for better information, that should be available to all.
- New Lung section on the website incorporating; dedicated informative videos and new patient information covering all aspects from diagnosis, treatments and research through to coping with the physical and psychological impact throughout the patient pathway.
- A dedicated face to face educational meeting with the UK’s Lung Neuroendocrine experts.
We will keep you posted on progress!