Rare Barometer Voices Survey

New Rare Barometer Voices survey on availability and experiences of rare disease treatments is now live and available in 23 languages!

We need your help to ensure as many people as possible from the rare disease community complete the survey. 

Please spread the word throughout your networks by sharing this link: http://bit.ly/eurordis-survey. 

To help you, we’ve created a toolkit with an email template and suggested social media posts.

Where responses allow, the results will be available for your country, disease and disease grouping. We will share the results with you via infographics, which you will be able to use in your advocacy work. 

Thanks in advance for your support!