Cancer 52 recently published their new briefing document ‘Getting a better deal for people with rare and less common cancers: the next ten years’.
During their consultation process over the summer of 2018 regarding what’s needed for people with rare and less common cancers in the NHS ten year plan they generated views and input from 14 key stakeholders and more than 50 of their member charities, including NET Patient Foundation. and 650 patients.
All the views generated informed their submission to the NHSE consultation, and now form the backbone of this briefing document.
We now know that much of what is needed for rare and less common cancers is the same as for all cancers: identify what is working or has potential and invest further in those programmes, particularly where it leads to speedier diagnosis, better patient care and easier and earlier access to treatment.