NET Patient Foundation Research 2017

NPF and NCRAS Public Health England partnership project has been compiling statistics on the incidence, prevalence and survival of NET patients in England using English cancer registry data, with an aim to also access Scottish, Welsh and Northern Irish cancer registry data to also get UK wide statistics. The English data will also be used for statistics on diagnostic and treatment referral pathways, the occurrence of multiple primaries in people with NETs, and the occurrence and treatment of carcinoid heart disease in England.

We have carried out four pieces of research this year, abstracts can be found below: