INCA: Unmet needs in global NETs patient community

The International Neuroendocrine Cancer Alliance (INCA) is a global alliance made up of 20 patient advocacy and research groups in 17 countries from Asia, Asia Pacific, Europe, and North America. Itswork is focused on supporting country member organisations and, through them, supporting neuroendocrine cancer patients (and their families) and advocating on their behalf to improve diagnosis, care and research.

The assessment INCA has conducted has identified important unmet needs in the provision of information to patients at diagnosis; in essential services and multidisciplinary care; in access to innovative diagnostics and treatment; and a lack of patient involvement in research strategies and clinical trials.

Read the full assessment here. 

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