NET Natter update

The Natter Groups do appear to be flourishing – we now have 27 NPF Natter Groups – with a further 4 associated groups – and a further half dozen new groups planned !

The Natter groups are support groups – but perhaps not quite fitting the stereo-type! They are focused on what you would like them to be – a chance to meet other people with a NET – to chat, gain and share information, experiences, advice  . . . the meetings are as varied as the types of NETs. . . in how formal/informal they are run, how frequently they meet – even where they meet!

They are for people within easy access of the venue – so not always hospital specific, for example, many NET patients in South Wales currently travel to Liverpool or London for NET Centre of Excellence review. . .but have Natter groups in Swansea and Cardiff where they can meet up. Some may be easier to get to than others, but all should be accessible . . . we know there are still some areas we need to reach.

We’ve got off to a flying start in January : Swansea, Coventry, Cheltenham, London, Edinburgh and Sutton Coldfield . . .

In February : Liverpool , Swansea , Kent- Rochester,, Herts – Letchworth , Bristol, Cheltenham,  NI – Belfast, Newcastle, Worcester, Essex – Leigh-On-Sea, and  South East London 

March : Harrogate (NEW) , Cardiff, Swansea, Cheltenham, Liverpool, Herts – Letchworth, Oxford 

  • also Horsham 25/3/17 and London SE 27/3/17

If you would like to find out more please do not hesitate to call or email Nikie

Telephone : office : 01926 883487, mobile : 07557 147698, email : [email protected]

We will be looking at the groups and asking your opinion – for example –  what you feel you get from the group, what are the main issues discussed and is there anything further we can do through the groups . . . this is so we can continue to develop the groups, continue to increase the group numbers – and group attendees . . .

I will be sending out the finished coordinator packs to all group leads – and be asking them to feedback with regard to issues discussed, activities and future plans . . .to be shared across groups, via this newsletter, for information, inspiration and support . . .also for information on speaker requests –  videos, skype links ? . . . 

APRIL DATES in my diary include :

1st Sutton Coldfield – new venue : St James Church Centre, Mere Green Road, Mere Green, Sutton Coldfield, B75 5BW : 11am to 1pm (Parking on-site – disabled spaces in front of the hall, all others behind the hall)

2nd Bristol – Arnos Manor Hotel, 470 Bath Rd, Brislington, Bristol, BS4 3HQ : starting at 10.30am

3rd Cheltenham – Maggie’s Centre, The Lodge, College Baths Road, Cheltenham, GL53 7QB : 10.30am-12noon

7th Swansea – Maggie’s Centre, Singleton Hospital, Sketty Lane, Swansea, SA2 8QL  : 1.30pm – 3pm

8th Newcastle – Level 1 – Room 1, Education Centre, Freeman Hospital, Newcastle, NE7 7DN : 11am – 2pm

12th Plymouth – The Mustard Tree, Derriford Hospital, Derriford Road, Crownhill, Plymouth, PL6 8DH : 2-4pm

20th Cardiff – Cardiff Medical Centre Sports & Social Club, Heath Park, Cardiff CF14 4XW : 1-3pm

24th Portsmouth – The Spindle Meeting Room, Building 1000, Lakeside North Harbour, Western Road, Portsmouth, PO6 3EN : 2.30-5pm

26th Liverpool – Conference room B, Aintree Lodge, Aintree University Hospital, Longmoor Ln, Liverpool L9 7AL : 1-3pm

29th Herts-Letchworth – Mrs Howard Memorial Hall, Norton Way South, Letchworth Garden City, Hertfordshire, SG6 1NX : 12-2pm

For Edinburgh and Glasgow – please check http://www.taect.scot/news-events for dates 

If you have a meeting and its not listed here or is planned for later date(s)  – please let me know asap  : [email protected]

 I do have a few groups who have dates agreed to the end of the year : all should be on the Patients Meetings Calendar : https://www.netpatientfoundation.org/support-information/patient-events/

Key issues mentioned to date include : Nutrition and Diet, Psychological well-being and  Accessing Specialist Care . . . 

Dont forget – if you have a telly or screen – and the right cable – our information videos can be watched at the Natter Groups – if so wished. 

For example – our awareness video : https://vimeopro.com/netpatientfoundation/patient-education

and Your Guide to Scans : https://vimeopro.com/netpatientfoundation/patient-support

More will be available in the very near future  . . .

Keep safe and well all

Nikie