Patient Meetings

Upcoming events

• 15 March 2012

  Ann Edgar Inaugural Patient Forum - Scotland

  Introducing the Ann Edgar Charitable Trust “Providing practical support in Scotland for patients living with carcinoidand other neuro-endocrine tumours”. The Trustees of The Ann Edgar Charitable Trust are pleased to announce the formation of this new charity, registered in Scotland, dedicated to the provision of practical assistance to those living with carcinoid, or other forms of NET (neuro-endocrine tumour). The charity’s founder, Ann Edgar, was herself a patient, diagnosed with Carcinoid Syndrome in 2005.  Very sadly, Ann was lost to us in August 2011, but not before she had seen the fruition of her final wish – the birth of her new charity to help others cope better with the stresses of living with cancer. To help explain more about TAECT and what we aim to achieve we are delighted to invite you, and a guest, to attend our inaugural meeting, which will be held on Thursday 15^th March 2012, at The Royal College of Physicians, 9 Queen Street, Edinburgh. The meeting will start at 11:00am and will close at approximately 3:30pm.  A buffet lunch will be served during the meeting. Directions to the venue are shown overleaf. The agenda will include:
  • An introduction to Ann Edgar, her inspirational life and her story
  • Information on The Trust, our aims and objectives, and how we can provide patient support
  • Speakers from the NET Patient Foundation, our partners in the provision of support to patients, and from Maggies, based at Edinburgh’s Western General
  • A chance to hear from medical specialists in the field of carcinoid and NETs
  • An opportunity for you to voice what you would like from The Trust – how can we help you?
  The Trustees will be delighted to see you there and we hope very much that you will be able to attend. It will greatly assist administration if you could, please, complete and return the enclosed registration form if you will be joining us. (Or, if you are unable to attend on this occasion but would like to be kept informed of future events please tick the relevant section of the form and return it to me - we will be pleased to add your details to our records).   We shall look forward to seeing you on 15^th March. In the meantime, if you would like any further information please contact me at the above address. David J Drummond Treasurer, For the Trustees of The Ann Edgar Charitable Trust.
   

  Edinburgh

• 19 May 2012

  AMEND Patient Day

  Come and join us from 9:30am to 4:30pm for this FREE popular and fascinating day.  Listen to world-class medical expert speakers, meet other patients and AMEND volunteers, and explore all that AMEND has to offer.  Patients (both members and non-members), their families, friends and interested health professionals are all welcome.  Book your place now using our booking form. For more information see: http://www.amend.org.uk/2012AGMInformationDay_000.asp

  Warwickshire

• 26 May 2012

  Liverpool Patient Meeting - Save the Date

  Please note that this is a provisional date only. Please watch this space for updates. If you'd like to register for this event please email us at hello@netpatientfoundation.org or call us on 0800 434 6476

  liverool

Past events

• 10 November 2011

  World NET Cancer Awareness Day 10 November- SAVE THE DATE!

  The NET Patient Foundation will be supporting a range of events to mark the 2nd World NET Cancer Awareness Day on Thursday 10th November. We will host a Patient Education Meeting at the Bicester Hotel, with expert speakers from NET centres around the UK. This central location is just 60 miles from London and Birmingham, and easily accessible by car or train. If you would like to attend this meeting, or if you would like to show your support by organising an event or selling our lapel pins, please contact us on 0800 434 6476 or at hello@netpatientfoundation.org  

  Bicester

• 18 October 2011

  Annual Hammersmith HPB Symposium

  Patients are being invited to attend a session on 'Neuroendocrine Tumours - what are the treatment options?' given by Rohini Sharma from Imperial College. The session begins at 2.45pm. Venue: Wolfson Lecture Theatre III Wolfson Education Centre Hammersmith Hospital Du Cane Road London W12 0HS For further information: Catherine Ranwashe NET Clinical Trial /Research Nurse PA to Professor Andrea Frilling Department of Surgery and Cancer Imperial College Healthcare NHS Trust Hammersmith Hospital Du Cane Road London, W12 0HS, UK Telephone: +44 (0) 2033133941 Fax: +44 (0) 2033133963 Email:catherine.ranwashe@imperial.nhs.uk Admission free  

  London

• 15 October 2011

  Cork Patient Meeting

  Please note, the Dublin meeting that we had scheduled for the 8th October has been cancelled, and replaced by this meeting, which will coincide with a medics' meeting. More details to follow... Please note: We sponsor a number of patient meetings that are planned by local NET teams. We will attend the events and try and ensure that we are aware of all of the agenda and venue details. If we cannot answer queries about meetings then we will put you in contact with event organiser

  Cork

• 8 October 2011

  Dublin Patient Meeting - MOVED TO CORK! - see below

  Please note that this meeting has been moved to CORK, and the date has been moved to 15TH OCTOBER. More details to follow. Please note: We sponsor a number of patient meetings that are planned by local NET teams. We will attend the events and try and ensure that we are aware of all of the agenda and venue details. If we cannot answer queries about meetings then we will put you in contact with event organiser
   

  Dublin

• 10 September 2011

  East Anglia Patient Meeting

  This meeting will include talks on "What nuclear medicine is planning to offer the NET patient" by John Buscombe. Full programme to be confirmed shortly. If you'd like to register for this meeting, please call us on 0800 434 6476, or contact us at hello@netpatientfoundation.com For directions to Newnham College, go to: http://www.newn.cam.ac.uk/about/about_find.shtml NB: Parking is available at the Sidgwick Site car park which is right opposite the college's Porters' Lodge on Sidgwick Avenue Please note: We sponsor a number of patient meetings that are planned by local NET teams. We will attend the events and try and ensure that we are aware of all of the agenda and venue details. If we cannot answer queries about meetings then we will put you in contact with event organiser

  Cambridge

• 5 September 2011

  NET Support Group - Gloucs, Worcs, Herefordshire

  Do you have a sarcoma or neuroendocrine tumour, including carcinoids and would like the opportunity to meet other people with a similar disease? Patients and their carers in Gloucestershire, Worcestershire and Herefordshire who have been affected by sarcomas or neuroendorcrine tumours are invited to attend a support group in Cheltenham on the first Monday of each month. It will be an opportunity for you to talk about your experiences, ask advice, seek support and learn more about your condition. The group is intended to be helpful and supportive in a relaxed and safe environment. The group will be facilitated by Donna Norman, Macmillan rare cancer clinical nurse specialist and Rachel Holland, clinical psychologist at Maggie’s; both who have many years experience of supporting people affected by cancer. Dates & times for 2011 - NB Please check dates and times before you come! July 4th August 1st September 5th October 3rd November 7th December 5th 5-7pm 1-11pm 5-7pm 11-1pm 5-7pm 11-1pm Come and join us at Maggie’s, The Lodge, College Bath Road, Cheltenham, GL53 7QB. Light refreshments provided Please contact Donna Norman, Macmillan Rare Cancer Clinical Nurse Specialist on 07554330251 if you would like to be part of this group.
   

  Cheltenham

• 20 July 2011

  Patient Meeting Essex

  The South Essex Neuroendocrine Patient Group cordially invite you to attend a meeting on Wednesday 20^th July 2011 6.00pm to 7.00pm in the Highwood Room at the Best Western Ivy Hill Hotel, Margaretting.  Professor Martyn Caplin, Lead Clinician at the Neuroendocrine Unit, Royal Free Hospital will be speaking to the group about new treatments for neuroendocrine tumours. The Best Western Ivy Hill Hotel is located off the A12, near Chelmsford.  The address is:   The Best Western Ivy Hill Margaretting Chelmsford Essex    CM4 0EH Light refreshments will be provided.  Please feel free to invite a family member or friend (up to a maximum of two per attendee please). If you are able to attend or have any queries please contact my secretary on (01206) 745210 or by email, Jennifer.lancaster@colchesterhospital.nhs.uk . Yours sincerely Dr M. McStay Consultant Physician & Gastroenterologist http://www.netpatientfoundation.org/wp-content/uploads/COLMAP.pdf    

  Chelmsford

• 9 July 2011

  Wales Patient Meeting

  Programme: 10am - Tea & coffee 10.30 - Welcome Cathy Bouvier, NET Patient Foundation 10.40 - The NET service in Wales and overview of advances in the field of neuoroendocrine cancer Dr Aled Rees 11.15 - Diet in NETs: the common questions and answers Sister Philippa Davies, Royal Free Hospital 11.35 - Q & A Session 12.15 - Close Dr Aled Rees If you'd like to register, please email us at hello@netpatientfoundation.com or call Cathy on 0800 434 6476
   

  Cardiff

• 19 February 2011

  South West Patient Meeting

  Due to lack of interest, the Plymouth meeting has been postponed until further notice. For more details, please download the information (PDF).

  Plymouth PL6 5US