Hi

It is my mum who has the NET and we live in Torbay, Devon but she is seen at the Royal Free now under Prof Caplin. Best wishes, Ellie

My partner pete is treated at queen Elizabeth hospital Birmingham

Hello all,
I am from the USA. I had surgery to remove 30% of my small bowel where my primary was located and 60% of my liver removed because of mets to the liver on Dec. 28, 2011. I am still recovering from surgery and it has been a long difficult ride. I had to be admitted twice since my surgery and the latest trip was for a pulmonary embolism. Now I am on Coumadin therapy. I am also on the Sandostatin LAR injections 30mg monthly. I had my surgery at a local hospital and my surgeon had just transferred to my area from a large NETs facility. I feel very blessed to have a specialist in my little area of Ohio.
I am not much of a poster on forums, but I wish everyone well!! Thanks for a most wonderful site!!!
Brenda

Ellie
Hi Ellie, I live in Dartmouth....and have had my op and treatment at Torbay Hospital...i wonder why everyone else has had to travel to London.....I have had wonderful treatment at Torbay.....it would be interesting to find out more!! Regards Elaine.