My father; Wrington Nr Bristol Somerset.
Hospitals; Bristol BRI and Royal Free

my husband. Royal Marsden hospital in Sutton. But with a strong leaning towards moving to the Royal Free in the future.

I live in Cambridgeshire
Been under the fantastic Hammersmith hospital for 13 years
Now under duel care with the Hammersmith and Addenbrookes in Cambridge

roger burst I live in Billingshurst West Sussex My Doctor is in Basingstoke I am also going to the Royal Marsden Sutton

I live in Steyning West Sussex and was fortunately referred by Worthing Hospital 8years ago to Dr Caplin at the Royal Free

Hi Im in Scotland (near Perth) I am not having treatment as my NET was removed by op. I am being monitored by my consultant in Dundee

Lynn
x

Hi, I live in Bournemouth & had my NET removed 2 years ago at the Royal Bournemouth Hospital. I am now under Dr Caplin at the Royal Free & am being monitored there.

Carolyn x

I was living in Bournemouth when first diagnosed, and then moved to Shropshire. But I've kept my original team of medics - which means travelling to the Marsden in Sutton and/or Southampton - well worth it in my opinion, as they really seem to know what they're doing; and the medics "down south" run their own neuroendocrine tumor network - so my treatment etc is routinely discussed by a much bigger group than otherwise. They've convinced me, anyway!

Hi I live in Portishead North Som. I go to the Royal Free. My treatment is being paid for currently by Frenchay Hospital Bristol. I am grateful to the doctors for my treatment

Hiya - I live in Solihull, had my primary tumour removed in Walsgrave Hospital, Coventry, but requested referral to Martyn Caplin at Royal Free and have been wholly monitored by them since September 2001.

Hi - My husband is under the team at Basingstoke but with some treatment at King's College Hospital, London

I love this site! I am from the USA. (California)

Unbelievable how many of the members on this site are from Europe.

I know these conditions is very rare and very hard to diagnose.

I have been seen by the Doctors and Specialists at the University of California, at Irvine. This Hopirtal is rated as in the top 3% of the USA.

I am recently being treated in St. Vincents Hospital in Dublin, Ireland. Am interested in hearing from others in Ireland, specifically to understand what treatments are available here - I find it difficult to find out much information here in Ireland
Many thanks Carmel

hi my name is julie and i live in the west midlands and i am being treated at new cross hospital wolverhampton, i also go to birmingham city hospital for the octreotide scan.

yours julie

Hi Julie,
Welcome to the site!
I have another octreoscan...:-( ..... in March to check for Tumor markers,after just having my second surgery in 14 months to remove cancerous NET Tumors. I will say, as you already know how I am NOT looking forward to this experience. Once inside the device,and arms up and behind me,I start getting all kinds of itches I never though I'd get,but I can not move sat all! I have had three already,and each time I think,there has to be an easier and much better way to do this.
Are you taking any octreotide/Sandostatin acet injections? Take care, Jim from the USA.