NET Patient Foundation http://www.netpatientfoundation.org Welcome to your neuroendocrine cancer community website Mon, 14 May 2012 13:44:06 +0000 en hourly 1 http://wordpress.org/?v=3.1 Ride 4 Rory – help us pass the £4K mark! http://www.netpatientfoundation.org/2012/05/ride-4-rory-help-us-pass-the-4k-mark/ http://www.netpatientfoundation.org/2012/05/ride-4-rory-help-us-pass-the-4k-mark/#comments Mon, 14 May 2012 13:19:40 +0000 maiasissons http://www.netpatientfoundation.org/?p=1138 Continue reading →]]> This Saturday, 19th May, a team of 12 cyclists are setting off to cycle from Caterham School in Surrey to Poole in Dorset, before travelling to Guernsey.

This event is being organised by the friends of Rory Johnson, who sadly passed away recently.  Rory’s friends and family hope to celebrate his life, and help raise awareness of NET cancers and funds for the NET Patient Foundation. Please show your support by visiting their Virgin Money Giving page, and help them to reach their goal of £4,000.

Ride 4 Rory’s Virgin Money Giving Page

We at the NET Patient Foundation offer you our support, encouragement and thanks this weekend, and hope that the sun shines for you!

]]> http://www.netpatientfoundation.org/2012/05/ride-4-rory-help-us-pass-the-4k-mark/feed/ 0 Take part in the BigGive Quiz, and raise funds for the NET Patient Foundation http://www.netpatientfoundation.org/2012/05/take-part-in-the-biggive-quiz-and-raise-funds-for-the-net-patient-foundation/ http://www.netpatientfoundation.org/2012/05/take-part-in-the-biggive-quiz-and-raise-funds-for-the-net-patient-foundation/#comments Mon, 14 May 2012 12:19:33 +0000 maiasissons http://www.netpatientfoundation.org/?p=1134 Continue reading →]]> Why not get together a team of friends, and take part in the BigGive Quiz on Wednesday 20th June? It’s a great way of helping to raise funds for the Foundation, and you might even scoop the jackpot of £250 for you and £500 for your charity. All you need to do is register online, and then take part in the quiz online on 20th June. Good luck, and please let us know if you decide to take part.

Please click on the image to go to the BigGive Quiz website…

]]> http://www.netpatientfoundation.org/2012/05/take-part-in-the-biggive-quiz-and-raise-funds-for-the-net-patient-foundation/feed/ 0 NEW, updated Insulinoma booklet now available http://www.netpatientfoundation.org/2012/05/new-updated-insulinoma-booklet-now-available/ http://www.netpatientfoundation.org/2012/05/new-updated-insulinoma-booklet-now-available/#comments Tue, 08 May 2012 18:10:05 +0000 maiasissons http://www.netpatientfoundation.org/?p=1130 To download a copy, click on the image below…

]]> http://www.netpatientfoundation.org/2012/05/new-updated-insulinoma-booklet-now-available/feed/ 0 Bangor Sponsored Events – Sunday 27th May – 2nd June http://www.netpatientfoundation.org/2012/04/bangor-sponsored-walk-sunday-27th-may/ http://www.netpatientfoundation.org/2012/04/bangor-sponsored-walk-sunday-27th-may/#comments Mon, 30 Apr 2012 12:09:45 +0000 maiasissons http://www.netpatientfoundation.org/?p=1081 Continue reading →]]> Lesley Dawson will be holding a series of sponsored events in memory of her husband Steven. A sponsored walk on Sunday 27th May will be followed by a kids’ bike ride and disco on Friday 1st June, and a sponsored bike ride on Saturday 2nd June. For more details about the walk, click on the poster below, and for more details on the other events, click here or visit Lesley’s Facebook page: Charity Bike Ride (Steven Dawson)

]]> http://www.netpatientfoundation.org/2012/04/bangor-sponsored-walk-sunday-27th-may/feed/ 0 Save the Date – NET Cancer Day – November 10th! http://www.netpatientfoundation.org/2012/04/save-the-date-net-cancer-day-november-10th/ http://www.netpatientfoundation.org/2012/04/save-the-date-net-cancer-day-november-10th/#comments Mon, 30 Apr 2012 11:55:38 +0000 maiasissons http://www.netpatientfoundation.org/?p=1113 Continue reading →]]> We are delighted to be able to announce that we will be holding a special Patient Event to mark the third global NET Cancer Day on Saturday 10th November. We will be inviting patients and their carers, and some of the UK’s top experts in the field of neuroendocrine cancers, to share information and experience in the beautiful surroundings of Ascot Racecourse.

If you’d like to express your interest in attending this event, please email us at hello@netpatientfoundation.org or call us on 0800 434 6476.  You might even like to let us know which topics you think should be covered at this event.

You can view talks and patient interviews from last year’s NET Cancer Day event on: www.youtube.com/netcancerday

]]> http://www.netpatientfoundation.org/2012/04/save-the-date-net-cancer-day-november-10th/feed/ 1 Liverpool patient meeting – Register now! http://www.netpatientfoundation.org/2012/04/liverpool-patient-meeting/ http://www.netpatientfoundation.org/2012/04/liverpool-patient-meeting/#comments Mon, 30 Apr 2012 11:43:30 +0000 maiasissons http://www.netpatientfoundation.org/?p=1069 Continue reading →]]> We are holding a patient education meeting at Aintree Racecourse on Saturday 26th May between 1 – 4 pm. This will be a great opportunity to hear from some of the top specialists in the world of NETs and to ask them any questions you may have. It’s also a chance to meet other NET patients living in your area. Speakers include Dr Juan Valle, Prof Graeme Poston, and Prof Vinjamuri.

If you’d like to register for this event, please email us at hello@netpatientfoundation.org or call us on 0800 434 6476. For more details of the event, please click here.

]]> http://www.netpatientfoundation.org/2012/04/liverpool-patient-meeting/feed/ 0 Son of NET patient completes the London Marathon http://www.netpatientfoundation.org/2012/04/son-of-net-patient-runs-the-london-marathon/ http://www.netpatientfoundation.org/2012/04/son-of-net-patient-runs-the-london-marathon/#comments Mon, 30 Apr 2012 10:55:59 +0000 maiasissons http://www.netpatientfoundation.org/?p=1027 Our huge thanks and congratulations to Steve Meigh, who completed the London Marathon on April 22nd, in support of his mum, Jo Breakwell, and to raise funds for the NET Patient Foundation.

To donate, please visit Steve’s page at: http://uk.virginmoneygiving.com/SteveMeigh

]]> http://www.netpatientfoundation.org/2012/04/son-of-net-patient-runs-the-london-marathon/feed/ 2 Laura runs the Brighton Marathon for NET patients http://www.netpatientfoundation.org/2012/04/laura-runs-the-brighton-marathon-for-net-patients/ http://www.netpatientfoundation.org/2012/04/laura-runs-the-brighton-marathon-for-net-patients/#comments Tue, 17 Apr 2012 10:30:43 +0000 maiasissons http://www.netpatientfoundation.org/?p=1092 Continue reading →]]> Laura Brooks ran Brighton Marathon on 15 April 2012 in 4 hours 30 minutes.

Laura said: ‘I have just completed my FIRST Marathon in Brighton a truly amazing day! The crowd were inspirational, it made me proud to be British, I really could not have done it without them. Of course it helps when you have a giant flower stuck on your head, you are wearing a tutu and your name  is emblazoned across your chest!  My mum, dad and sister and my friends came to Brighton to watch – I was overwhelmed by all the support and couldn’t have done it without them. I am so pleased to have had this opportunity to raise money for NET Patient Foundation and contribute to the sum needed to help research this very rare type of cancer. I am also thrilled to do it for Natalie Lobel (thank you for the cheer at 24 miles very much needed, although the sight of that cider in your hand very nearly threw me off track at the last minute). It is the hardest thing I have ever done, but equally the best! It was BRILLIANT and even if I have to walk down the stairs backwards and roll out of chairs for now it was well worth it. Now for that cider!’

]]> http://www.netpatientfoundation.org/2012/04/laura-runs-the-brighton-marathon-for-net-patients/feed/ 0 PLANETS gala ball http://www.netpatientfoundation.org/2012/04/planets-gala-ball/ http://www.netpatientfoundation.org/2012/04/planets-gala-ball/#comments Tue, 17 Apr 2012 09:36:22 +0000 maiasissons http://www.netpatientfoundation.org/?p=1102 Continue reading →]]> PLANETS is a new charity based at Southampton General Hospital, dedicated to defeating Pancreas Liver And Neuroendocrine Tumours (NETs). At PLANETS we raise money to help the Hospital provide world-class care for patients in supporting the hospital’s pioneering work in treatment, research and education of these difficult and complex cancers.

The next PLANETS ball is on 18th May 2012. For more details click on the link below: Emilys Gala Dinner Poster

]]> http://www.netpatientfoundation.org/2012/04/planets-gala-ball/feed/ 0 PLANETS NET Patient Meeting http://www.netpatientfoundation.org/2012/04/planets-net-patient-meeting/ http://www.netpatientfoundation.org/2012/04/planets-net-patient-meeting/#comments Tue, 17 Apr 2012 09:31:41 +0000 maiasissons http://www.netpatientfoundation.org/?p=1097 Continue reading →]]> PLANETS is a new charity based at Southampton General Hospital, dedicated to defeating Pancreas Liver And Neuroendocrine Tumours (NETs). At PLANETS we raise money to help the Hospital provide world-class care for patients in supporting the hospital’s pioneering work in treatment, research and education of these difficult and complex cancers.

The long awaited 1st PLANETS NET patient day will take place at Chilworth Manor Hotel just outside Southampton on Monday 16th July 2012.

Full programme details will follow very shortly once all speakers and topics have been confirmed.

This will be a great opportunity for patients to get together as well as having talks from some of the most influential consultants in the field of NETS.

The event will run all day and include refreshments and lunch – all at no cost !

Spaces are limited so it will be strictly on a first come first served basis.

Please contact Layla at layla267@aol.com to book a space!


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