NET Patient Foundation

Welcome to your neuroendocrine cancer community website

Research

Validation of the EORTC QLQ-GINET21 questionnaire for assessing quality of life of patients with gastrointestinal neuroendocrine tumours

G Yadegarfar, L Friend, L Jones, L M Plum, J Ardill, B Taal, G Larsson, K Jeziorski, D Kwekkeboom, J K Ramage and on behalf of the EORTC Quality of Life Group Abstract Background: Quality of life is an important end point in clinical trials, yet there are few quality of … Continue reading

Prof. Martyn Caplin on current research in the UK

It is wonderful that the Telegraph has published the articles on neuroendocrine tumours. The more awareness the better for these types of “rare” cancers. Alex Masters has done a fantastic job in his writing but of course there are a … Continue reading

Current Clinical Trials

Research in the field of neuroendocrine cancers is ongoing. The following advances may still be under investigation in clinical trials and may not be approved or available at this time. Always discuss all diagnostic and treatment options with your doctor. … Continue reading

Why research into NETs is important

Research is a step-by-step process that involves collecting and examining information. Research into Neuroendocrine Tumours is vital to improve our understanding of the disease and how it can be treated, and aims: To understand what causes NETs To understand how … Continue reading

Taking part in research

Guidelines have been drawn up for researchers, to tell them what information people need to help them decide whether to take part in a clinical trial. But there is a lot of discussion about how much people really want to … Continue reading

About Clinical Trials Registers

Clinical trial registers Information about completed and ongoing randomised controlled clinical trials in the UK and abroad is available on the Current Controlled Trials (CCT) website. Current Controlled Trials Ltd is part of the Science Navigation Group of biomedical publishing … Continue reading