Patient Stories
12 November 2012
My Insulinoma: Personal experiences from real people with an insulinoma
My Insulinoma: Personal experiences from real people with an insulinoma is an eBook written by people with an insulinoma who want to share their story about having the condition. It is written in their own words and in their own voice. … Continue reading
15 October 2012
Liz’s story
SLIPPING THROUGH THE NET AND CONFRONTING MY CHILDRENS’ CANCER By Elizabeth Dent It’s bad enough when the surgeon has to remove your pancreas and parathryoids, pronouncing that you have pancreatic neuroendocrine tumours. But, believe me, it is far more devastating … Continue reading
3 July 2009
Christine’s story
My Journey with NET’s began back in July 1997; I was 29 weeks pregnant at the time. My problems started with tooth and jaw ache eventually making it nearly impossible to open my mouth. I became very disoriented, my GP … Continue reading
30 May 2009
Ruth’s story
Carcinoid Cancer A Story Of Shock, Empowerment, and Joy By Ruth Gerdes Auburn, Nebraska “Why didn’t you get those liver lesions checked out?” That was the question that launched my carcinoid journey. In December of 2006, my husband Myron and … Continue reading
5 February 2008
Lynn’s story
My story began in 2006 when I was sent for an ultrasound with suspected gallstones. I had been bothered with pain after eating rich or fatty foods and it was painful when my GP pressed in the gallbladder area. It … Continue reading
20 January 2008
Carmen’s story
I am a very grateful patient, or should I say one of the lucky ones. I am writing my story because I am so grateful to the wonderful NET team at the Royal Free Hospital (RFH). I was diagnosed with … Continue reading
20 March 2006
Denise’s story
I had been backwards and forwards to the doctors for two years with very vague bowel problems. I was diagnosed with IBS and sent home with tablets which made me throw up. My blood sugar levels seemed to drop on … Continue reading
19 March 2006
Suzanne’s story
Suzanne Long lives in the UK, but until now she has looked towards America for information and support. In September Suzanne Long 2005 she travelled to a NET conference in Philadelphia, America where she was pleased to find she had … Continue reading
18 March 2006
Dave’s story
Dave Tew, 53, is a former West Country bike cop. His job involved shift work and stress, and in the 1990s he began suffering from bowel problems. But it was not until 2004 that he was diagnosed with a neuroendocrine … Continue reading
17 March 2006
Partner story – Pat
Partners of NET patients need support and understanding too. Pat Moon explains the roller coaster ride of having to accept that her husband has cancer but also learning to live life to the full and with a positive attitude. Like … Continue reading
16 March 2006
Bob’s story
Bob Moon was first treated for a neuroendocrine tumour some 25 years ago. He has gone on to have treatment for another form of cancer and tests for a third. But today, 59 year old Bob, a former policeman continues … Continue reading
16 March 2006
Carole’s story
My problems began in August 2001. I had just returned from holiday when I experienced severe rectal bleeding. After a home visit from my GP, I was referred to a consultant within a couple of days. I had a sigmoidoscopy, … Continue reading
Loading ...