NET Patient Foundation

Welcome to your neuroendocrine cancer community website

Patient Information

[Patient information intro]

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High Grade NETs

This is our newest publication; a booklet on High Grade NETs. Click on the image to download.

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Surgery in NETs

This is our booklet covering aspects of surgery in all types of NETs, as well as what to expect when you go for surgery. Thanks to Mr Neil Pearce, Consultant Surgeon at Southampton General Hospital, for his help in compiling … Continue reading

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Carcinoid Cancer

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Bronchial (lung) carcinoid

Click here to download our booklet on bronchial (or lung) carcinoid. This is now thought to be the most common type of NET cancer.

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Carcinoid heart disease

Please click on the image to download a copy of this booklet.

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Goblet cell carcinoid

Please click on the image to download a copy of this booklet.

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Non-functioning pancreatic NET

Our new, UPDATED booklet on Non-Functioning Pancreatic Neuroendocrine Tumours Please click on the image to download the booklet.

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Phaeochromocytomas

Please click on the image to download the booklet.

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Gastrinomas

This is our new, updated Gastrinoma booklet. Please click on the image to download a copy of this booklet.

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Glucagonomas

Click on the image to download a PDF of this booklet

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Insulinomas

Please click on the image to download a copy of this booklet.

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VIPomas

Please click on the image to download a copy of the booklet

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Food Symptoms and Treatment Record Diary

You may find this diary useful to help note down the doctors you see, and the dates of your consultations. There is a space to keep a record of your blood test results. At the back of the booklet is … Continue reading

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Nutrition in NETs

This booklet was written in collaboration with Caley Schnaid, the first specialist NET dietician, whose role at the Royal Free Hospital in London was sponsored by the NET Patient Foundation.

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Adreno-cortical Cancer

Please click on the image to download a pdf of this booklet

Your guide to Neuroendocrine Tumours: Diagnostic Tests and Treatments

Ipsen Limited, the UK subsidiary of the Ipsen Group, has launched a new booklet and DVD for people with neuroendocrine tumours (NETs) entitled ‘Your guide to Neuroendocrine Tumours; Diagnostic Tests and Treatments’. “The patient journey can encompass a whole host … Continue reading

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MEN1 Patient Information booklet

This is part of a series of fantastic booklets produced by A.M.E.N.D, The Association for Multiple Endocrine Neoplasia Disorders (www.amend.org.uk) To download this booklet, please click on the image.

MEN2a PI Book cover 2010

MEN2a Patient Information Booklet

This is part of a series of fantastic booklets produced by A.M.E.N.D, The Association for Multiple Endocrine Neoplasia Disorders (www.amend.org.uk) To download this booklet, please click on the image.  

MEN2b PI Book cover 2010

MEN2b Patient Information Booklet

This is part of a series of fantastic booklets produced by A.M.E.N.D, The Association for Multiple Endocrine Neoplasia Disorders (www.amend.org.uk) To download this booklet, please click on the image.