NET News
22 February 2012
Work Capability Assessment for cancer patients
On the 16th December, the Government launched a consultation on reforming the Work Capability Assessment. This was with a view to increasing the number of cancer patients who receive unconditional support through the benefits system while they are receiving treatment. … Continue reading
High Grade NETs
This is our newest publication; a booklet on High Grade NETs. Click on the image to download.
31 January 2012
Join our Patient Panel
We are hoping to form a Patient Panel, with representatives from around the country, and with different types of NETs. Would you like to join us? Our first meeting will be on 29th February near Heathrow. We’re looking for a … Continue reading
31 January 2012
Updated Gastrinoma booklet now available
We are in the process of updating all of our patient information. The Gastrinoma booklet is the latest, and is now available by clicking here. Updated Phaeochromocytoma, Glucagonoma and VIPoma booklets will soon … Continue reading
31 January 2012
New patient groups in Scotland and Southampton
This month has seen the launch of two new patient support groups – the Ann Edgar Charitable Trust in Edinburgh, and Planets in Southampton. Both of these groups will be organising local patient events, as well as raising money to … Continue reading
19 January 2012
Son of NET patient runs the London Marathon
Best of luck to Steve Meigh, who will be running the Virgin London Marathon on 22nd April in support of his mum, Jo, and to raise funds for the Foundation. To donate, please visit Steve’s page at: http://uk.virginmoneygiving.com/SteveMeigh
16 January 2012
“United by our experience of a rare cancer”
Joan Wells and Esther Edwards met at a NPF patient meeting, and have since become great friends, and helped to raise more than £2,000 for the Foundation. We’d like to thank them for all of their hard work, and also … Continue reading
16 January 2012
Wednesbury woman’s appeal to find other patients with rare type of NET
Stephanie, from Wednesbury in the Midlands, was first diagnosed with a neuroendocrine tumour in her breast in 2007. There have been very few recorded cases of this rare type of NET, and Stephanie is keen to make contact with anyone … Continue reading
4 January 2012
Bizarre Christmas challenges raise funds for research into NETs
This Christmas, friends of Natalie Lobel, have embarked on a series of challenges, including dancing the conga, and gatecrashing Hamleys. Natalie was diagnosed last year with malignant insulinoma, a rare type of NET cancer, after suffering a seizure and discovering … Continue reading
4 January 2012
Thanks to Con and Jennifer and all of their wedding guests
Our huge thanks to Jennifer Moore and Con McManus, who asked their wedding guests to donate to the NET Patient Foundation in memory of Jennifer’s sister Rosemary. In Jennifer’s own words: “Con and I were married on September 3rd and … Continue reading
1 January 2012
Assessment of Quality of Life study of NET cancer patients
Jorge Garcia-Hernandez, from Birkbeck College, University of London, has published a study to assess how coping strategies and personal beliefs affect patients with neuroendocrine cancer. To see the results, click here.
12 December 2011
Wishing you all a very peaceful Christmas
We’d like to wish you all the best for the holiday period, and the year ahead. Thanks to everyone who has supported the Foundation in 2011. We look forward to a productive year in 2012, working hard to increase awareness … Continue reading
7 December 2011
Results of Everolimus plus octreotide clinical trial published in The Lancet
Results published in The Lancet show that a combined therapy of everolimus plus octreotide may be beneficial for patients with low-grade or intermediate advanced pancreatic neuroendocrine tumours. To read the article, click here.
6 December 2011
Last orders on Christmas cards!
Christmas Card 1 Christmas Card 2 Our beautiful Christmas cards are selling out fast. There are a few packs remaining in the designs shown here, so please get your orders in soon. Thanks to Hannah and Baudine for … Continue reading
5 December 2011
NET Cancer Day 2011 a great success in the UK and around the world
November 10th marked the 2nd Worldwide NET Cancer Awareness Day. In the UK, we held a patient event at Newbury Racecourse, which was very well attended by over 80 patients and family members. There were three excellent and informative talks, … Continue reading
5 December 2011
A fabulous year from our amazing fundraisers!
We are delighted to tell you that, for the first time ever, we have exceeded our target for the year of £50,000. This is all down to the incredibly generous support of so many of you, your friends and families. … Continue reading
5 December 2011
Interview at home with NET patients and caregivers
Between 28th November and 1st November, John Morris from World One is hoping to organise two 90 minute interviews in the Cambridge, Oxford, Bristol or London areas with Patients being treated with S.S.A.s. They and a Caregiver will be given … Continue reading
5 December 2011
A little bit of trivia in Ascot
“On 10th November 2011 my very kind friend Lorraine Webster organised a supper and Trivial Pursuit evening for 20 ladies at her home in Ascot. The evening was a huge success both in terms of entertainment and the amazing food … Continue reading
1 December 2011
Cancer Research UK unites with global research groups to develop treatments for patients with rare cancers
This is good news for rarer cancers. Neuroendocrine cancers aren’t on the list yet, but we’ll do our best to get them there. Cancer Research UK unites with global research groups to develop treatments for patients with rare cancers Friday … Continue reading
8 November 2011
No ‘Steve Jobs’ effect for NET cancers
Peter Stothard has written a fantastic piece discussing the misreporting of Steve Jobs’ condition, and pointing out the importance of recognising the unusual characteristics of NET cancers. To read the piece, follow this link: http://timescolumns.typepad.com/stothard/2011/11/steve-jobs-the-precise-diagnosis.html