Our Advisory Board is a group of specialists from surgeons to dieticians, who all have a wealth of experience working with neuroendocrine tumours. Our advisors are on hand to answer any of your queries that we can’t answer for you immediately.
Prof Val Lewington
Professor Lewington trained in Southampton where she was Director of Nuclear Medicine from 1992-2004 before moving to the Royal Marsden NHS Foundation Trust as Consultant in Nuclear Medicine and PET CT . As head of the radio isotope therapy unit at the Royal Marsden from 2004 to 2011, she led the introduction of new unsealed radiation source treatments for neuroendocrine tumours, lymphoma and bone pain palliation. At an international level, she has Chaired the European Association of Nuclear Medicine Therapy Committee, Administration of Radioactive Substances Therapy Subgroup and SIOPEN [International Society of Paediatric Oncology (European Neuroblastoma)] nuclear medicine committee.
Professor Lewington moved to her new post as Chair of Clinical Therapeutic Medicine at King’s College London in February 2011.
Professor Lewington’s main research focus is targeted radionuclide therapy for thyroid cancer, lymphoma, metastatic bone disease and neuroendocrine tumours and the application of functional imaging to assess treatment response. Current projects include the investigation of diagnostic mIBG imaging as an independent prognostic indicator in high risk neuroblastoma . A prospective study evaluating PET CT with diffusion weighted MRI as response indicators for radionuclide therapy in neuroendocrine malignancy is nearing completion.
She has provided nuclear medicine support for the current NCRI FOXFIRE study which combines chemotherapy with radio embolisation for patients with hepatic metastases arising from colorectal cancer. Further trials using this approach in patients with neuroendocrine tumours are planned.
Mr Graeme Poston is a consultant surgeon with a wealth of experience and a well established NET clinic in Liverpool.
Dr Christos Toumpanakis
Dr Christos Toumpanakis is a consultant gastroenerologist who works alongside Dr M Caplin at the Royal Free Hospital in London.
Philippa is senior nurse specialist in the NET unit at the Royal Free Hospital in London.
Louise is a clinical nurse specialist at the Royal Marsden Hospital in London.
Angie Jones – Patient Advisor
Angie was diagnosed with a pancreatic NET in 2006. She has been a great help to the foundation as a fundraiser.
Jo Grey – Specialist Patient Advisor
Jo runs the charity A.M.E.N.D., which supports people affected by multiple endocrine neoplasia disorders.