15 February 2012
High Grade NETs
This is our newest publication; a booklet on High Grade NETs. Click on the image to download.
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15 February 2012
This is our newest publication; a booklet on High Grade NETs. Click on the image to download.
This entry was posted in NET News, Patient Information. Bookmark the permalink.
At the time of diagnosis, what was your level of fatigue?
Total Voters: 300
17 April 2013
We are delighted to have heard that Macmillan will be sponsoring a new service for ACC patients, to be run as a joint venture between AMEND and the NPF. Initial activities will include: Produce updated patient information Set up a … Continue reading →
17 April 2013
Diagnosing less common conditions could get easier, thanks to new web-based tools that pool information from a wide variety of sources. CrowdMed is a new website that aims to do just this. Anyone can join CrowdMed and analyse cases, regardless of … Continue reading →
16 April 2013
We are looking for a Patient representative to sit on the Trial Management Group for a new clinical trial in patients with paraganglioma or phaeochromocytoma. The trial – “VIBRaNT” is looking to investigate the effect and safe delivery of a … Continue reading →
Neuroendocrine Tumours (NETs) are relatively uncommon, usually slow growing cancers. You may hear them referred to as GEP NETs, because they often arise in the cells of the stomach (gastro), intestines (entero) and the pancreas (pancreatic). Continue reading →
We are proud to be a part of The World NET Community, formed in Berlin in March 2010. This is an international community of patient advocacy groups and NET organisations from around the world working together to raise awareness about NET cancers on a global level. Continue reading →
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3 Comments
22 February 2012
I am newly diagnosed and looking for answers.
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22 February 2012
My husband is also newly diagnosed with high grade NET. Meeting with an oncologist at Moffitt cancer center, specializing in NETs/Carcinoid, next week.
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21 January 2013
I am a pharmacist and interesting in NET treatments, please advice if their any articles or studies enable lanreotide to be used in high grade NET?and if their is a protocol to use it with other drugs.
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